Sunday, October 31, 2010

Day +22 & 23

ANC 1027-->1435.5

I actually don't feel like blogging about these days.  I don't know why!  They were good days.  Even fun and relaxing.  I just don't really have anything to say about them... 

You know, that may be a good thing.  They weren't anymore exciting than any other day.  No need to tell the world about an ordinary day.  I was just like everyone else.  That's a beautiful thing that we take for granted.  Boring days!  Not all of us are lucky enough to have a day that no one cares about.  I enjoyed my days of unimportance.  Enjoy yours!

I'm going home day +25!!!!!!!!!
I'll blog about that later I suppose.  The day after Halloween will be pretty wicked sweet.

Until Next Time, BMT Babe is out**

Friday, October 29, 2010

Day +21

ANC 1210
WBC 2.2
RBC 3.62
Hemoglobin 11.2
Plt Ct 30
ABS # 0.3

I feel 100%!!!  Today was a nice ZEN day.  I felt like I was staying at a monastery more than a hospital.  I took time in my morning to eat a balanced breakfast.  Watched a little TV.  Stretched and meditated for a few hours.  And read my book. 

Very chill day which I ended with "Malice in Wonderland" (a modern London twist on Alice) and several episodes of "South Park."  I can't help it. I love that show.  Plus it goes sooo well with peanut m&m's at two in the morning. 

That was my day.  Yeah, that's it.  I'm not going to lie.  I enjoy my relaxing zen days.  All I had to do was concentrate on me and my health and what helps make me happy.  I think more people should have days like this.  I have now dubbed them Buddha monastery days-inspired by "Crazy Sexy Cancer Tips."  Thanks Kris Carr! 

Enjoy days when you do things that make you happy for as long as you want.  You don't think you should lie on a mat and listen to music for 2 1/2 hours.  There are more important things you could be doing?  Foo-ey!  At that time, meditating in your own way is the most important thing you can do for your well being and health.  Right now I have the freedom to do this but I really believe everyone should take time out and have some monastery time.  Quiet your mind and enjoy the life you are living!

zen circle
 Until Next Time, BMT Babe is out**

Wednesday, October 27, 2010

Day +20

Yes, it has been that long already!
But look at this progress!!!

ANC 1386!!!!!!!
WBC 2.1
RBC 3.69
Hemoglobin 11.4
Plt Ct 47
ABS # 0.3

These numbers are soooo important to me! If everything stays just like this/better I am going home MONDAY!!!  This makes me incredibly happy and extremely nervous all at the same time.  I want to go to my couch and my kitchen and my room soooooo badly I can taste it.  But I do not want anything jeopardized with my health. Thinking about that....I had visitors today.

Soooooo I have this family you know.  And they're crazy anyway.  Today one of the crazy members (my aunt-in-law, that's how I feel about her) decided to come by my room at 8 o clock in the morning.  Not the best time to visit someone and not the best time to see them for the first time in probably years.  Yeah, we're all really close...
So initially I thought the gesture was nice.  Even when people only appear when you're sick, they are at least still appearing.  But no!  She's a moron and thought that the first visit this morning was okay so she came back a few hours later with my cousin who just had knee surgery-meaning, he was in a dirty wheelchair that was pushed into my isolation room.  And, to top all of this off.  In BMT you have a list of up to 6 people because they don't want too many people/too many germs coming back and forth.
They are not on my list nor have ever been!!!!

We were not happy with the hospital today.  I was freakin out because they are not the most germ friendly people and I will be sooooo pissed if I get something from them that keeps me from going home.  That kinda messed up my mood for the rest of the morning.  I got food in me though and wasn't as moody.

Later, my mother and I had a long talk with the doctor about getting the house ready for me to move back into.  This process is pretty much ridiculous!  There are soooooo many things we have to do and change.  This was around the time I had a mental breakdown.  It was a lot to take in you know.  I don't even feel like me anymore sometimes.  My face is different and I don't have very much of my own bone marrow and my freakin birth mark disappeared.  Yeah, how weird is that.  It's been there since I was born and now its 10% of what it was. 

It honestly is a lot for a person's mind to digest.  BMT has taken my former life and flipped it on its ear.  Nothing is the same and it won't be for up to a year.  It's just something I have to deal and come to terms with.  Imagine that though.  To have your entire life, the life you know and love and are use to, completely revamped by people looking in from the outside.  It's hard but I will deal and make it through this little thump in my life.  

Until Next Time, BMT Babe is out**  

Monday, October 25, 2010

Haven't written in a good while

Soooooo that fever that was suppose to go away more than a week ago....It Didn't!

I had that stupid fever for 5 days!!!!!

It took it completely out of me.  And my ANC.  It went from 973 to 520 to 210 to 181!!!  That sucked a lot.  Thank God it's back up now.
ANC 658
WBC 1.4
RBC 3.26
Hemoglobin 10.1
Plt Ct 34
ABS # 0.4

So I'm happy everything is going up now.  Do you know what that means???  They are thinking about discharging me this week!

Excellent news for me of course, mom on the other hand is tweeked hard.  She wanted to have the house completely redone before I got home but I'm a fast healer I suppose.  My mother being my mother, decided to go above and beyond the norm for house maintenance after BMT.  She decided to switch our rooms all together since mine collected more dust.  She also wants to take out the celling fan, repaint the walls with hypo-allergenic paint, have hypo-allergenic curtains made and install a Hepa filter.  This is all doable of course...but I don't know how doable it all is in like 3 days!

But she's awesome and will figure something out.  All that really needs to be done is to have the ducts cleaned so I'm not breathing in dusty air.  Then I can go home!!!!  I wish I could help her move and do all this stuff but that kinda defeats the whole purpose.  She's such an independent little woman.  I really just want someone (sure if it's a big burly man) to jump in and do everything for her.  That would make things soooo much easier. 

I will keep you updated since there will be no more fevers in my future!

Until Next Time, BMT Babe is out**

Saturday, October 16, 2010

Day +7 8 9

My ANC is kicking ass: 105, 98.7, 68.2

Yet....
 I have had a fever of around 104 degrees for the last 3 days.  Yeah, MISERABLE!  After all of that awesomeness on Wednesday, my body decided to betray me.  Everything is achy and I'm shivering like I'm in the Arctic.  Not fun at all.  This is the first time I've been conscious enough to write.  I hope tomorrow will be better.  If it's any indication tonight, I think the fever is gone.  Now I will try and eat and feel a little bit better.

Until Next Time, BMT Babe is out**

Day +6

ANC 28.6!!!!  Day 6 and it's already going up
WBC 0.2
RBC 3.30
Hemoglobin 10.9
Plt Ct 40
ABS # 0.1

Nurses: Deb (a.m.)  Very nice older woman.  Woke me up like a pro, super kind.
Andrea (p.m.)  Sweetheart!  We watch "Dating in the Dark" together.

Woke up feeling fabulous!  Had a very nice sleep.  I put on music and started dancing and singing at 10.  After my breakfast of pancakes and bacon (which was surprisingly good)  I decided it would be a great day to get a workout in.  I got all suited up and went out to the bike.  My thighs were burning and I was loving it!  When I came back to my room, my doctors snuck up behind me.  Clearly they could see I was doing just fine.  Of course, because they're doctors, they didn't make a big deal about my ANC.  Quote: It could be 2 tomorrow.  Whatever doctors!

Those wonderful words of reassurance didn't hinder my mood at all.  I went back to eating my after workout snack--Apple Turnover.  I still felt 1000% percent so I listened to music read and made a ton of jewelry.  Of course, the listening to music wasn't complete without dancing like a maniac!  I just felt soooooo good that I was doing belly dance moves I didn't know I knew.  I broke a sweat I was dancing so much!  So worth it though.
I concluded my day with Xmen a hot apple turnover and a warm blanket.  Ahhh.

Until Next time, BMT Babe is out**

Wednesday, October 13, 2010

Day +5

ANC 7.1
WBC 0.1
RBC 3.30
Hemoglobin 10.9
Plt Ct 22
ABS # 0.1

Nurses: Courtney (a.m.) Sweetheart!
Ron (p.m.) Weirdo Spaz...nice enough though. Really loud for night shift however, ugh.

Lazy day.  Well for me.  I woke up and watched Rachel Ray.  I wasn't torturing myself per say but watching the food was beautiful pain.  I want a Salad sooooo bad!!!!!  I talked to the doctors of course and everyone is soooo happy that I am doing soooo well.  I'm pretty happy about it too.

Next, I showered, ate, stretched, talked to Tommi and watched "The Big C" (wonderful show about Laura Linney being diagnosed with Cancer.  Sound familiar?)  Just as my day was concluding nicely, I received platelets.
Bad Idea!
I had an allergic reaction to them.  Got super itchy and couldn't stop coughing.  Kinda scary!  Luckily, Children's had the CUTEST doctor on call last night.  I am such a girl!  I'm having an allergic reaction and coughing my lungs out yet I still find myself able to grin huge and giggle when he comes in the room.  RIDICULOUS!  He was so goofy too.  He kept making jokes about being cool like Bob Marley.  Made him even CUTER!!!

Anyway, when I woke up from my dose of Benadryl and Hydrocotozon I was in such a bad mood.  I guess I was just groggy or something but no one could do anything right.  Plus, no one did!  It took my nurse 25 minutes to come into my room and get the machine that was beeping.  He didn't have his phone! And, I had the shitty CA again that is loud and oblivious.  She also had the nerve to erase stuff on my white board to write her name up there.  No one else has done that!!!  Everyone else respects the fact that I had the crap on my freakin board for a freakin reason.
Not happy last night!

I slept awesome though!!!  Watched a crappy but cute movie with Queen ("Just Wright"), watched some "Cold Case" that reminded me of my life and fell asleep unbothered for the moment.  Nice!

Until Next Time, BMT Babe is out**