Monday, January 31, 2011

Day +116

HHHHEEEEELLLLLLLLLLOOOOOO!!!!!  I know I've been gone for awhile.  I'm trying to make the most of every single day. This includes watching RuPaul's Drag Race for hours, banging the crap out my drums, eating tons of junk in an effort to gain weight, and calling it a day around 2 in the morning. 
I know!  I'm ashamed of me!

Well now, that all stops! I am still out to have fun with my days but I can only be that worthless and sloth-like for so long.  And now that time has passed.  This just isn't me.  I actually do not enjoy scarfing down candy bars and high calorie frozen dinners.  I believe my skin hates it even more than I do so we must change that right away.  The thing was that I got even skinnier then my already skin pre BMT self.  This means that all of my size 0-1 jeans were sitting on me like limp curtain noodles (my own sad combo metaphor).  I looked awful!  At least by my standards.  I had no curves in any places and started to resemble a "sick person."  I saw this but no one else seem too which was good, or a big fat lie.  Anyway, I took matters into my own hands and looked up ways to gain weight online.  All the articles I read said "add more caloric content" "incorporate good fats and carbs" "don't pig out on junk or else the weight gained will go directly to your hips and thighs"....That's exactly where I want it! 

So I decided to go completely out of my norm and eat over processed super sweet sodium rich food.  Not a good idea at all!  It has been a few weeks and I have gained a muddy complexion, a bumpy and raw tongue, a little bit of the dropsies (not wanting to do anything), and only 1 pound.  Worth it???  Not in the least bit!  So I'm going back to the way I've been eating all my life: salads, raw veggies, fish, salad, stir fry, lean chicken, nothing fried or breaded, and salad.  I enjoy my way of living!

But to change it up I decided to be open minded to Kris Carr's Crazy Sexy Diet.  Kris Carr was at my Tattered Cover bookstore last Friday!!!  If anyone is unfamiliar with Mrs. Carr let me just say, her book Crazy Sexy Cancer Tips really helped me get through my Bone Marrow Transplant! 
She is a very awesome cancer cowgirl and I got to meet her! 

She is on a book tour right now promoting her new book Crazy Sexy Diet.  It's not an actual diet but it might as well be.  There is a 21 day cleanse at the end of it.  You know, taking all of this new found knowledge of the horribleness of the regular food we eat and trying to improve our well being by throwing it all out and listening to Hippies lol.  Don't get me wrong, I love Hippies.  I'm a low key, boho hippie most of the time.  But honestly, gluten free, sugar free, dairy free, flavor free cookies are not my thing.

The thing with the diet is you don't really get much food because you're too busy throwing away everything made with dairy, eggs, wheat, animal products, salt, sugar, in a can or frozen.  Yeah, it is totally vegan, gluten free, organic only.  The issue with this is that real people need to be able to have food.  A plate of 80/20-80 percent raw and 20 percent cooked is great in theory but doesn't translate if everything that is cooked has to be raw first, meaning purchased that day or sometime close.  That is unrealistic to go grocery shopping every single day.  That is why a refrigerators and freezers were invented.  Since we are not hunters and gatherings living in tents anymore and not too many of us have our own farms in our backyard, we need to be able to get our food and have it for a second.

My other issue, coming from a cancer patients perspective, it is really hard to stand and prepare your food for hours shortly after chemo or a transplant.  Kris Carr has tumors all over her liver but she never went through chemo or a transplant.  Her cancer is dormant so she's figured out ways to live with it.  That is fantastic for her but each cancer is different and mine doesn't even allow me to eat raw nuts and unpasteurized vegan cheeses so she's definitely not representing majority of fellow cancer survivors because some of the things that "make you so much better" are impossible to us.  We also need a lot of calories (or as much as we can take in) after chemo.  Starting our day with a glass of water with lemon and cayenne, herbal tea, and green juice will kill us before noon.

Oh yeah, and I don't like that she makes correlations between what you eat and getting cancer.  Not in the manner of an actual nutrition fact like others have done but almost like "that burger you ate that one time caused this, that makes it kinda your fault."  She of course does not actually say or mean that (I actually asked her!) but I just don't like anyone using themselves as proof.  Carr was a party girl that didn't sleep but did yoga and drank coffee.  Then she got sick and saw the errors of her ways.  I was a nerdy thirteen year old that eat all her veggies and then some, went to bed around 9 and was active and physically healthy through dance.  The equations aren't always so cut and dry.  Bad living leads to disease.  Oh, and good living can also lead to disease.

Anywayz, that's my rant about that.  I'm still going to try the cleanse but I know what I will incorporate for the long term and what I won't.  I don't believe to be a healthy and Happy individual you need to eliminate so many things from your diet.  Of course don't live off of frozen dinners or the drive through.  Eat salad and raw veggies whenever you can.  Cut back on dairy cause inflammation and Flem Suck.  But don't keep yourself from experiencing wonderful culinary creations because they used non organic environmentally friendly canola oil.

Friday, January 14, 2011

Day 100!!!

It's so funny because day 100 is no different than day 99 or day 101 but in BMT circles its a super big deal.  I'm all for that though.  I am happier than a clam...I never understood that saying, how happy can clams be?

I had my bone marrow aspirate done on Wednesday and everything was WONDERFUL!!!  My ANC was 8943 and my ALC was back to 1.4.  I am also 100% Leukemia Free!  Thank you little Italian baby <3

I feel 1000% fantastic.  I got off sooooo many medications!  All of my morning and evening meds fight in one pill box.  Before I had an overflowing pill box and then another set of pills in my pocket.  I'm sooooo happy about my progress.  Now I'm crying out of joy.  I am soooo lucky to be given a second/third chance.  And with this chance, I plan to do everything in my power to help people like me and everyone else in the world.  I mean this too! 

So far I am sitting on the arts committee of Children's Hospital to help beautify the place that I, and so many others, spend so much time in.  We want the environment to be as inviting as possible to combat the terrible circumstances that most of the patients must deal with.  I know personally how bleak and depressing transfusion rooms can be.  Our current project is getting art and personalized paintings into these rooms to help kids of any age feel a lot better when they have to be in one.

Second, I have created a YouTube account called BMTBabe (naturally).  On my channel, I have motivational videos inspired by my experience.  I want to become a voice for cancer survivors and anyone else that wants to make the most of the life they were given.  My goal is to give people the confidence and motivation to live their lives to the fullest without needing tragedy (like a cancer diagnoses) to propel them there.  Here's my link: http://www.youtube.com/user/bmtbabe

With this same YouTube account, I am raising money for the American Cancer Society by selling my homemade Jewelry.  And when I say homemade, I don't mean plastic beads and string.  I've been making jewelry for years and can design any beaded accessory you can imagine.  Through the YouTube videos I will be taking request for custom jewelry and sending the proceeds to the American Cancer Society.  http://www.youtube.com/watch?v=AJ2Tti7ptek

I like keeping busy!  Please help if you read my blog even once.  I greatly appreciate it.

Until Next Time, BMT Babe is Out**

Friday, January 7, 2011

So Close but Still so far

So I am doing amazing!  I'm supper happy to blog this information.  My ANC is in the 6 thousands and my ALC is still in normal people territory!  I feel great.  I'm working out and eat well.  I'm even practicing my drums like a crazy person.

Alas, some days I just remember how shitty and unfair this is and all I can do is cry.  I still keep up my positive attitude and uplifting mindset because that is what gets me through.  Its not fake either.  I'm not always happy and I don't pretend to be.  But I do know that I am lucky to be on the other side of this and appreciate my second/third chance at life.  The only thing with that is my life was at college.  My life was with my friends.  My life was dancing.

I try not to upset myself by going through people's pictures of different blocks on facebook but today I couldn't help it.  I saw people doing things that I would have been doing if I was there.  Things I should have gotten a chance to do.  Things that were taken away from me.  I know that I am a stronger and better person since this but I would give up all this strength and wisdom to just be a stupid college student that isn't worried about her blood count.

I can't stop crying but I know it will pass.  I will go back to relishing everyday and making the most out of my situation.  But I have to be true to myself when I feel this way.  Today I just happen to be in front of my computer when this feeling came on. 

Everything else is going great though.  This is just harder than anyone could possibly imagine.

Until Next Time, BMT Babe is Out**